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Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study

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Johnson B, Gibson G, Baskerville D, Castellano G, de Courcy J, Iqbal H, Piercy J, Williams A, Pinedo-Villanueva R, Rylands A.

Orphanet J Rare Dis. 2025 Jun 6;20(1):282. doi: 10.1186/s13023-025-03796-z.

2025

PMID

40481583

https://doi.org/10.1186/s13023-025-03796-z

PSP

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Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study
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